The last entry was about my rather ambitious level of physical activity during the weekend. Activity that came with a price. Silly me! As it turns out, there can be too much of a good thing. Since then, I’ve been dealing with the fallout from those outings. Oh, woe is me; my aches and pains have flared up.
Which has me asking, as always: what’s the deal with my body?
The medical establishment clearly does not have it together when it comes to understanding, diagnosing and treating this mysterious affliction called fibromyalgia. Theories about this disease (or is it a syndrome — who knows?) abound.
Right after the first medical opinion came in suggesting that fibromyalgia was the label for my condition, one of the first reference works I found was Fibromyalgia and Chronic Myofascial Pain (Starylanyl & Copeland, 2001). This book became the starting point in my search for answers to what ails this aging shell. The authors state that they “believe that there is often an initiating event that activates biochemical changes, causing a cascade of symptoms” (p. 11). There are many statements throughout the text that fibromyalgia “may be due to this” or “may be due to that.” And there is an incomprehensible preoccupation with the distinction between tender points and trigger points and their role in fibromyalgia and myofascial pain. The book is subtitled “A Survival Manual,” and that’s exactly what it is: a blueprint for living with chronic pain.
In an ambitious 2006 book (What Your Doctor May Not Tell You About Fibromyalgia), authors R. Paul St. Amand, M.D., and Claudia Craig Marek postulate their theory of “inadequate energy as the cause of fibromyalgia” (p. 32). They suggest that the bodies of sufferers do not produce enough ATP (adenosine triphosphate), which they label as the “currency of energy” (p. 31) in our cells. They claim to have “stumbled upon the treatment for fibromyalgia quite by accident” (p. 40). And that treatment, they say, is a substance called guaifenesin (an expectorant drug, often present in cough and cold remedies, and also available in pill form as a supplement).
In an equally-impressive analysis and argument, Dr. David Dryland (of Ashland, Oregon), just this year (2007), published The Fibromyalgia Solution. His hypothesis is that fibromyalgia victims suffer from fight-or-flight fatigue (an ubiquitous condition of modern living), which leads to sleep deprivation and a diminished supply of the neurotransmitter dopamine. In terms of possible treatment implications, Dryland suggests that two dopamine drugs (originally prescribed for Parkinson’s disease and/or restless-leg syndrome) are likely candidates to provide relief for many. These drugs go by the names of Mirapex and Requip.
What is going on here? Well, what I’ve just provided is a brief list of examples demonstrating that fibromyalgia remains a total mystery not only to me but to the entire medical world. And those of us who suffer with this illness, or think we do, are left to go from doctor to doctor, or one alternative practitioner to another, in order to find some relief from our ever-present pain.
This last week, in the space of three days, I revisited my Traditional Chinese Medicine practitioner and my body-work therapist. They are both very skillful and helpful in my quest for pain relief. I will keep seeking them out, especially when I’m in the kind of state I find myself in now. However, of all the approaches I’ve tried, in all the experiments I’ve performed on myself, the single most effective remedy I’ve found so far is the element magnesium (in the form of a supplement called Fibroplex.) I discovered this particular miracle because of an off-hand remark made last winter at a neurofeedback specialist’s office. He said, “Jim, you may want to try some of this” – as he went over to the shelf to pick up a bottle of the product. I purchased it, tried it, and I’ve felt much, much better ever since. Of course, it wasn’t the cure, it’s just the one thing that has made the most difference in my life in years. Since then, I’ve discovered much evidence to suggest that magnesium deficiency is commonly associated with a significant percentage of my current symptoms.
Now, another possibility has come along. A few days ago, good friend “V” in Oregon suggested that I take a look at the latest issue (November 2007) of Scientific American. In a persuasive article (pp. 62-72; the full article is not available online without a subscription) entitled “ Cell Defenses and the Sunshine Vitamin,” researchers Luz E. Tavera-Mendoza and John H. White outline the dangers to a human body without enough Vitamin D.
In short, the authors offer evidence to suggest the possibility of “widespread vitamin D deficiency contributing to a number of serious illnesses” (p. 64). And, as it turns out, fibromyalgia may be one of them. Yes, you guessed it: doing a Google search on the topic turned up several references, among them an article entitled “Vitamin Deficiency Causes Fibromyalgia!”
Who knows. Maybe this is the answer. At any rate, it seems easy enough to check out. I’ve now added 4,000 international units of D3 to my daily regimen of supplements.
I’ll keep you posted.